2021 Patient Advocacy Patient Safety 
Sensible Medicine
APRIL 14, 2024
It can take several years for the full safety profile of drugs to be known. For instance, CAR-T was given to myeloma patients in 2014, but we only learned it can cause Parkinsonism in 2021. Some speakers represented patient advocacy organizations and later lashed out at me on twitter.
Health Populi
APRIL 26, 2022
Compared with a year ago, more patients and their advocates are seeking quality therapies, innovation, engagement, and integrity from pharmaceutical companies, based on research published today from PatientView. Together, these patient groups represented about 19 million patients’ perspectives for 2021.
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